Ubidecarenone for mitochondrial disease


This leaflet is for parents and carers about how to use this medicine in children. Our information may differ from that provided by the manufacturers, because their information usually relates to adults.

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This leaflet is for parents and carers about how to use this medicine in children. Our information may differ from that provided by the manufacturers, because their information usually relates to adults. Read this leaflet carefully. Keep it somewhere safe so that you can read it again.

 

Ubidecarenone

Also known as ubiquinone, co-enzyme Q10 and co-Q10.

 

This leaflet is about the use of ubidecarenone (also widely known as ubiquinone) for mitochondrial disease.

 

Why is it important for my child to take ubidecarenone?

In some mitochondrial diseases, the cells do not have enough co-enzyme Q10 (also known as ubiquinone), which the mitochondria in cells need to work properly to make energy. Giving your child ubidecarenone does not cure the mitochondrial disease but it may help reduce the symptoms.

 

It is important that your child takes this medicine regularly to replace the ubiquinone that your child’s body does not produce naturally.

 

What is ubidecarenone available as?

Capsules: 10 mg, 30 mg or 120 mg (other strengths are also available)

 

Tablets: 10 mg

 

Liquid medicine: 50 mg in 10 mL (other strengths are also available)

 

When should I give ubidecarenone

Ubidecarenone can be given once or twice each day. Try to give it at about the same time(s) each day.

 

If it is to be given once each day, this can be in the morning or the evening.

 

If it is to be given twice each day, this should be once in the morning and once in the evening. Ideally, these times are 10–12 hours apart, for example some time between 7 and 8 am, and between 7 and 8 pm.

 

Give medicine at about the same times each day so that this becomes part of your child’s daily routine, which will help you remember.

 

How much should I give?

Your doctor will work out the amount of ubidecarenone (the dose) that is right for your child. The dose will be shown on the medicine label.

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